Have you ever fallen in the trap of not knowing what it is you want or what it is you would like to do with your life. For most of us, this is a common question we all have and dwell over time and time again. Now, throw a disability in to the mix and sometimes your ability to choose has somewhat escaped your grasp and now we rely on someone or the community to help us get what we want or what we need. So here I ask is it truly what we want? I would have to say NO, it’s merely what we can get.


As a person with a disability I am faced with this battle and I have decided it cannot go on this way any longer. It may seem like I am not appreciative of the help I get but what I want is a totally different thing. I learned in my life that if you don’t decide what it is in life that you want, then someone else will. What I mean is that the system will force you to participate in the world that doesn’t meet your needs. The definition of insanity is doing something over and over again and expecting a different result. Now it’s time to identify the result we want and do something different to get there.


For a person with a disability this may seem difficult and unobtainable but that is not the case. The government has spent too long telling you what you need and funding organisations who do the same. If at all you would hope that they would ask, but their service is restrained by the parameters of which they gain the funding. So you will get what you are given and learn to like it.


Enter the room ‘The National Disability Insurance Scheme.’


This concept is a great start and modelled off the My Way programme established in our great South West Busselton Western Australia. The goal of this programme is to give people with disabilities more say in what help they need and want. This seems great, now we are getting somewhere. .


So what is it that you want? The merry go round continues and it is time for you to decide what it is you want in your life. Design it and make it happen rather than waiting for it to happen or something to happen to you.


Where do I start?


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